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Abstract , as there are numerous evidence gaps and inconsistencies in the delivery of care that may be addressed using this tool. METHOD(S): A purposive convenience sample of specialist palliative care providers from the Supportive and Palliative Care unit of a major Australian

Epidermolysis Bullosa in Pediatric Palliative Care: A Case Series.   [11-Sep-2023]

Ball K.; Camilleri S.; Kiefel S.; Schulz I.; Weston L.; Sacks B.
Abstract care needs of children with severe EB are poorly described. Aim(s): The aim of this case series was to examine the contribution of a pediatric palliative care service to the complex health care needs of children with severe EB. Method(s): We present a

Mapping end-of-life and anticipatory medications in palliative care patients using a longitudinal general practice database.   [20-Apr-2022]

Khalil H.; Garett M.; Byrne A.; Poon P. ; Gardner K.; Azar D.; Craig L.; Karimi L.
Abstract and increased patient and family distress in managing palliative care at home. The study aimed to map the use of end-of-life and AM in a cohort of palliative care patients through the use of the Population Level Analysis and Reporting Data Space and to discuss
Abstract INTRODUCTION: This study assessed the feasibility of integrating telehealth-assisted home-based specialist palliative care (TH-SPC) into a rural community setting. METHOD(S): This was a prospective mixed-methods pilot study conducted in rural
Abstract in tertiary hospital palliative care outpatient services. In oncology settings, they have been shown to improve quality of life, symptom control, patient satisfaction, communication between clinicians and consumers and potentially overall survival, as a result

Palliative care challenges-access to anticipatory medications in rural and remote settings.   [10-Jul-2019]

Byrne A.; Ristevski E.; Poon P. ; Khalil H.
Abstract , a secure survey platform was distributed to a total of 18 managers from 18 rural and remote organisations across the South East of Victoria in Australia. Results A total of 29 nurses completed the survey (response rate 28%). Almost a third of all
Abstract implementation of a palliative approach in aged care using a facilitation training model and existing palliative approach toolkit resources. Method(s): Organisation-wide educational intervention delivered by a specialised Palliative Approach Facilitator for 6
Abstract to older people is internationally significant. Aim(s): To examine the knowledge, attitudes and practices of geriatricians in providing palliative care and working with specialist palliative care services.We also aimed to capture self-reported barriers

Intractable feeding intolerance in children with severe neurological impairment: a retrospective case review of nine children known to a pediatric palliative care service.   [26-Dec-2023]

Katz N.T.; Cooper M.S.; Kularatne A.; Prebble A.; McGrath K.H.; McCallum Z.; Antolovich G.; Sutherland I.; Sacks B.H.
Abstract contributor to their deterioration or death. (2) To consider terminology to describe the severe end of the spectrum of feeding difficulties in children with SNI. RESULT(S): Mean age at death was 10.3 years (range: 5 - 15.6), and median time from palliative
Journals
Title Int J Palliat Nurs
Title Palliative medicine
Title BMC Palliat Care
Title The Australian journal of advanced nursing : a quarterly publication of the Royal Australian Nursing Federation
Title Paediatric Nursing skills for Australian Nurses
Title Journal of Clinical Nursing
Title Journal of Pediatric Nursing
Title Nursing Open
Title Nurse Education Today
Title Clinical Simulation in Nursing