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Title: | Prospective longitudinal evaluation of distress for parents of children with ALL | Authors: | Parker C.;Schilstra C.;McCleary K.;Kotecha R.;Wakefield C.;Martin M.;Trahair T.;Mateos M.;Fardell J. | Monash Health Department(s): | Australian & New Zealand Children's Haematology Oncology Group | Institution: | (Parker, Martin) Children’s Cancer Centre, Monash Children’s Hospital, Clayton, VIC, Australia (Schilstra, Wakefield, Fardell) Behaviour Sciences Unit, Kids Cancer Centre, Sydney Children’s Hospital, Sydney, NSW, Australia (Schilstra, McCleary, Trahair, Mateos, Fardell) Discipline of Paediatrics and Child Health, University of New South Wales, NSW, Australia (McCleary, Mateos) Kids Cancer Centre, Sydney Children’s Hospital, Sydney, NSW, Australia (Kotecha) Perth Children’s Hospital, Perth, WA, Australia |
Copyright year: | 2024 | Abstract: | Advancements in treating paediatric patients with acute lymphoblastic leukaemia (ALL) have led to a five-year overall survival rate ≥ 90%.1 There is growing emphasis on reducing morbidity for patients, including supporting wellbeing for the entire family unit. Previous studies have demonstrated that parents of children with ALL experience heightened levels of distress, with negative consequences for their quality of life. Previous studies have been cross-sectional with small patient populations, with a paucity of data in the Australian & New Zealand context. This study explores the trajectory of parental distress, anxiety, depression, anger and need for help across the diagnosis and treatment course. | Conference Name: | Australian & New Zealand Children's Haematology Oncology Group Annual Scientific Meeting | Conference Start Date: | 2023-08-01 | Conference End Date: | 2023-08-03 | URI: | https://repository.monashhealth.org/monashhealthjspui/handle/1/52491 | Type: | Conference presentation | Subjects: | oncology paediatrics acute lymphoblastic leukaemia |
Appears in Collections: | Conference Posters |
Files in This Item:
File | Description | Size | Format | |
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Prospective longitudinal evaluation of distress for parents of children with ALL.pdf | 1.57 MB | Adobe PDF | View/Open |
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