Please use this identifier to cite or link to this item: https://repository.monashhealth.org/monashhealthjspui/handle/1/52572
Full metadata record
DC FieldValueLanguage
dc.contributor.authorDi Cianni F.-
dc.contributor.authorMastrolia M.V.-
dc.contributor.authorBiancalana E.-
dc.contributor.authorMarinello D.-
dc.contributor.authorEmmi G.-
dc.contributor.authorMosca M.-
dc.contributor.authorSimonini G.-
dc.contributor.authorTalarico R.-
dc.date.accessioned2024-10-16T01:56:20Z-
dc.date.available2024-10-16T01:56:20Z-
dc.date.copyright2024-
dc.date.issued2024-10-09en
dc.identifier.citationFrontiers in Medicine. 11(no pagination), 2024. Article Number: 1456063. Date of Publication: 2024.-
dc.identifier.urihttps://repository.monashhealth.org/monashhealthjspui/handle/1/52572-
dc.description.abstractBehcet's syndrome (BS) is a rare chronic multi-systemic inflammatory disorder that usually involves adults between third and fourth decades of life, while pediatric and juvenile onset are relatively rare. BS young patients (YP) often develop a full-blown disease late after onset, requiring careful diagnostic workup and regular follow-up while they grow up. In this regard, the purpose of transitional programs is to ensure continuous high-quality care to YP with chronic conditions, providing them with the skills necessary to become independent and empowered adults able to chronically self-manage their disease. EULAR/PReS released the first set of standards and recommendations for transitional care (TC) of YP with juvenile-onset rheumatic diseases, but the appropriate timing for transition, the tools to evaluate patients' readiness, and indicators of transition plans effectiveness still need to be identified. Although little is known regarding TC in BS, it is easy to assume that BS YP will benefit from developmentally and disease-specifically appropriate transition plans, which may promote continuity of care, improve perceived quality of life and prevent poor disease outcomes. This perspective article discusses the key concepts and the goals of TC, addressing the potential challenges and opportunities of TC for YP with BS in clinical practice.Copyright © 2024 Di Cianni, Mastrolia, Biancalana, Marinello, Emmi, Mosca, Simonini and Talarico.-
dc.publisherFrontiers Media SA-
dc.relation.ispartofFrontiers in Medicine-
dc.subject.meshBehcet disease-
dc.subject.meshinterpersonal communication-
dc.subject.meshmultidisciplinary team-
dc.subject.meshpatient education-
dc.subject.meshrheumatic disease-
dc.titleChallenges and opportunities in transitional care process in Behcet's syndrome.-
dc.typeArticle-
dc.identifier.affiliationCentre for Inflammatory Diseases at Monash Health-
dc.type.studyortrialReview article (e.g. literature review, narrative review)-
dc.identifier.doihttp://monash.idm.oclc.org/login?url=https://dx.doi.org/10.3389/fmed.2024.1456063-
dc.publisher.placeSwitzerland-
dc.identifier.institution(Di Cianni, Marinello, Mosca, Talarico) Rheumatology Unit, Azienda Ospedaliero-Universitaria Pisana, Pisa, Italy-
dc.identifier.institution(Di Cianni) Department of Medical Biotechnologies, University of Siena, Siena, Italy-
dc.identifier.institution(Mastrolia, Simonini) Rheumatology Unit, ERN ReCONNET Center, Meyer Children's Hospital IRCCS, Florence, Italy-
dc.identifier.institution(Mastrolia, Simonini) NEUROFARBA Department, University of Florence, Florence, Italy-
dc.identifier.institution(Biancalana) Department of Experimental and Clinical Medicine, University of Florence, Florence, Italy-
dc.identifier.institution(Emmi) Department of Medical, Surgery and Health Sciences, University of Trieste, Italy-
dc.identifier.institution(Emmi) Centre for Inflammatory Diseases, Monash University, Department of Medicine Monash Medical Centre, Melbourne, VIC, Australia-
dc.identifier.institution(Emmi) Clinical Medicine and Rheumatology Unit, Cattinara University Hospital, Trieste, Italy-
dc.identifier.affiliationmh(Emmi) Centre for Inflammatory Diseases, Monash University, Department of Medicine Monash Medical Centre, Melbourne, VIC, Australia-
item.openairetypeArticle-
item.cerifentitytypePublications-
item.grantfulltextnone-
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
item.fulltextNo Fulltext-
Appears in Collections:Articles
Show simple item record

Page view(s)

6
checked on Oct 23, 2024

Google ScholarTM

Check


Items in Monash Health Research Repository are protected by copyright, with all rights reserved, unless otherwise indicated.