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https://repository.monashhealth.org/monashhealthjspui/handle/1/58037| Title: | Respectful language use in multiple sclerosis research outputs supports person-centred care. | Authors: | Janiszewski C.M.S.;Grech L.B. | Monash Health Department(s): | Monash University - School of Clinical Sciences at Monash Health | Institution: | (Janiszewski, Grech) School of Psychology, Deakin University, Burwood, VIC, Australia (Grech) School of Clinical Sciences at Monash Health, Monash University, Clayton, VIC, Australia |
Issue Date: | 7-Apr-2026 | Copyright year: | 2026 | Publisher: | Elsevier B.V. | Place of publication: | Netherlands | Publication information: | Multiple Sclerosis and Related Disorders. 110(no pagination), 2026. Article Number: 107175. Date of Publication: 01 Jun 2026. | Journal: | Multiple Sclerosis and Related Disorders | Abstract: | There is a disconnect between the language preferences of people with multiple sclerosis (MS) and the language used to refer to them in research outputs. Authors continue to use terms such as "patient" or "sufferer," acronyms such as "PwMS" or "PLwMS," and identity-first language (in contrast to person-first language) when referring to people with MS and their symptoms and comorbidities. Such language may be disrespectful or contextually inaccurate and may influence healthcare interactions in ways that do not align with the principles of person-centred care. Although further research is needed to better understand the complex relationships between demographic and health-related factors and disability language preferences among people with MS, the language used in research outputs should be guided by respect. In this commentary, we encourage authors to carefully consider how people with MS are referred to in relation to their health condition, disability, symptoms, and comorbidities.Copyright © 2026 | DOI: | https://dx.doi.org/10.1016/j.msard.2026.107175 | PubMed URL: | 41946090 | URI: | https://repository.monashhealth.org/monashhealthjspui/handle/1/58037 | Type: | Note |
| Appears in Collections: | Articles |
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