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Conference/Presentation Title: | Upper Gastrointestinal Cancer Care Coordination (UGICCC) Project: a protocol for a registry-based randomised control trial of symptom monitoring, using patient-reported outcomes, and care coordination integrated into clinical practice. | Authors: | Pilgrim C.;Furness K. ;Liman J.;Emery J.;Liew D.;Schofield P.;Scarborough R.;Rutherford C.;Ayton D.;Earnest A.;Philip J.;White K.;Brown W.;Croagh D. ;Ioannou L.;Evans S.;King M.;Zalcberg J.;Farrugia H.;Brady L.;Dodson T. | Institution: | (Ioannou) MelbourneAustralia (Evans, Brown, Earnest, Ayton, Scarborough, Liew, Liman) Monash University, Melbourne, Australia (King) University of Sydney, Sydney, Australia (Croagh, Furness, Dodson) Monash Health, Melbourne, Australia (Pilgrim) Alfred Health, Melbourne, Australia (White) University of Sydney, Sydney, Australia (Philip) St Vincent's Health Australia, Melbourne, Australia (Rutherford) University of Sydney, Sydney, Australia (Schofield) Swinbourne University, Melbourne, Australia (Emery) University of Melbourne, Melbourne, Australia (Brady) Victorian Integrated Cancer Services, Melbourne, Australia (Farrugia) Victorian Cancer Registry, Melbourne, Australia (Zalcberg) Monash University, Mebourne, Australia | Presentation/Conference Date: | 16-Mar-2021 | Copyright year: | 2019 | Publisher: | Springer International Publishing | Publication information: | Quality of Life Research. Conference: 26th Annual Conference of the International Society for Quality of Life Research. San Diego, CA United States. 28 (SUPPL 1) (pp S103), 2019. Date of Publication: 2019. | Abstract: | Aims: Background: Upper gastrointestinal (UGI) cancers (pancreatic, oesophageal and stomach) have a dismal prognosis, with five-year survival of only 7.7-28.5% even when detected in their early stages and treated with a complete resection. UGI cancers are characterised by a high symptom burden. It is critical that patients with these cancers receive the best possible symptomatic control, while the search continues for treatments to improve survival. Recent research has shown that patient-reported outcomes (PROs), integrated into clinical practice in a meaningful way to drive action, are associated with improved patient health outcomes and decrease burden to the healthcare system. Aim(s): To determine whether the systematic measurement, identification and management of PROs in clinical practice, coupled with information support to patients, improves health outcomes for patients with UGI cancers. Methods and Design: A registry-based randomised, multicentre, controlled trial will be designed to assess whether, compared to usual practice, the UGI Cancer Care Coordination (UGICCC) intervention is effective in improving health-related quality of life in patients diagnosed with UGI cancers, as the primary outcome. The UGICCC intervention involves: (1) collection of PROs to allow patients to track and report their symptoms over time; (2) provision of real-time feedback to patients for management of symptoms; and (3) alerts to a care-coordinator of patients reporting severe or worsening symptoms to allow for triage and follow-up as well as provision of real-time reports to clinicians. The secondary outcome measures are to assess whether patients assigned to the intervention arm demonstrate: reduced health service use and emergency department visits; lower level of information needs; timely referral to palliative care services; and increased median survival. These will be evaluated at baseline, 3-, 6- and 12-months. Participants will be recruited from eight hospitals in Victoria, Australia, with high volumes of UGI cancer cases (including one regional and one private site), and stratified by site and disease. Result(s): Conclusion(s): Ethics and dissemination: Ethics approval will be obtained for all participating sites. Result(s): of the trial, and secondary outcomes, will be submitted for publication in a peer-reviewed journal and findings will be linked with the Upper Gastrointestinal Cancer Registry. | Conference Start Date: | 2019-10-20 | Conference End Date: | 2019-10-23 | DOI: | http://monash.idm.oclc.org/login?url= http://monash.idm.oclc.org/login?url=http://dx.doi.org/10.1007/s11136-019-02257-y |
ISSN: | 1573-2649 | URI: | https://repository.monashhealth.org/monashhealthjspui/handle/1/26980 | Type: | Conference Abstract | Subjects: | health care system *patient-reported outcome quality of life randomized controlled trial Victoria adult cancer patient cancer registry cancer survival care coordinator case report clinical article *clinical practice conference abstract *digestive system cancer emergency health service emergency ward ethics female follow up health care utilization human male median survival time multicenter study palliative therapy patient referral case report care coordinator emergency health service Victoria randomized controlled trial quality of life *patient-reported outcome patient referral palliative therapy multicenter study median survival time male human health care utilization health care system follow up female ethics emergency ward cancer survival cancer registry cancer patient adult *digestive system cancer conference abstract *clinical practice clinical article |
Type of Clinical Study or Trial: | Randomised controlled trial |
Appears in Collections: | Conferences |
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