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Title: | Fertility preservation toolkit: A clinician resource to assist clinical discussion and decision making in pediatric and adolescent oncology. | Authors: | McQuillan S.;Drew S.;Kemertzis M.A.;Ranjithakumaran H.;Hand M.;Peate M.;Jayasinghe Y.;Orme L.;Gillam L.;McCarthy M.;Super L. | Institution: | (Kemertzis, Jayasinghe) Department of Obstetrics and Gynaecology, Level 7 Royal Women's Hospital, University of Melbourne, Cnr Grattan Street, Parkville, VIC 3052, Australia (Gillam) Children's Bioethics Centre, Royal Children's Hospital, Australia (McCarthy) Murdoch Children's Research Institute, Melbourne, Australia (Kemertzis, Ranjithakumaran, Hand, Peate, Drew, Jayasinghe) Department of Obstetrics and Gynaecology, Royal Women's Hospital 5School of Population and Global Health, Australia (Gillam) Department of Pediatrics, University of Melbourne, Australia (Jayasinghe) Children's Cancer Centre, Royal Children's Hospital, Parkville, Australia (Super, Orme) Monash Children's Cancer Centre, Monash Medical Centre, Clayton, VIC, Australia (Super, McQuillan) Obstetrics and Gynecology, Pediatric Gynecology, University of Calgary, Alberta Children's Hospital, Calgary, AB, Canada | Issue Date: | 23-Apr-2018 | Copyright year: | 2018 | Publisher: | Lippincott Williams and Wilkins (E-mail: kathiest.clai@apta.org) | Place of publication: | United States | Publication information: | Journal of Pediatric Hematology/Oncology. 40 (3) (pp e133-e139), 2018. Date of Publication: 2018. | Journal: | Journal of Pediatric Hematology/Oncology | Abstract: | Purpose: Fertility preservation (FP) discussions in children with cancer presents unique challenges due to ethical considerations, lack of models-of-care, and the triadic nature of discussions. This study evaluated a fertility toolkit for clinicians involved in FP discussions with pediatric, adolescent, and young adult patients and parents. Material(s) and Method(s): A survey-based, longitudinal study of clinicians at The Royal Children's Hospital Melbourne involved in FP discussions undertaken at 3 time-points: 2014, alongside an education session for baseline assessment of oncofertility practices (survey 1); after each toolkit use to evaluate case-specific implementation (survey 2); 2016, to evaluate impact on clinical practice (survey 3). Result(s): Fifty-nine clinicians completed survey 1. Over 66% reported baseline dissatisfaction with the existing FP system; 56.7% were not confident in providing up-to-date information. Only 34.5% "often" or "always" provided verbal information; 14.0% "often" or "always" provided written information. Survey 2 was completed after 11 consultations. All clinicians were satisfied with the discussions and outcomes using the toolkit. Thirty-nine clinicians completed survey 3. Over 70% felt confident providing up-to-date FP knowledge, 67.7% "often" or "always" provided verbal information, and 35.4% "often" or "always" provided written information. Conclusion(s): Clinicians desire improvement in FP practice. The toolkit provided significant perceived and actual benefits.Copyright © 2018 Wolters Kluwer Health, Inc. All rights reserved. | DOI: | http://monash.idm.oclc.org/login?url=http://dx.doi.org/10.1097/MPH.0000000000001103 | Link to associated publication: | Click here for full text options | PubMed URL: | 29481385 [http://www.ncbi.nlm.nih.gov/pubmed/?term=29481385] | ISSN: | 1077-4114 | URI: | https://repository.monashhealth.org/monashhealthjspui/handle/1/37040 | Type: | Article | Subjects: | priority journal young adult confidence health personnel attitude controlled study female *fertility preservation gynecologist access to information adolescent adult article *childhood cancer *clinical assessment tool *clinical decision making clinical nurse specialist clinical practice health care quality human human relation job satisfaction longitudinal study male medical education medical staff oncologist paramedical profession health care quality health personnel attitude human human relation job satisfaction longitudinal study male medical education medical staff oncologist paramedical profession *childhood cancer young adult Article adult adolescent access to information priority journal *clinical assessment tool *clinical decision making clinical nurse specialist clinical practice controlled study female *fertility preservation gynecologist |
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