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Title: | Experiences of Australian men diagnosed with advanced prostate cancer: A qualitative study. | Authors: | Legg M.;Dunn J.;Laurie K.;Frydenberg M. ;Lowe A.;Davis I.D.;Chambers S.K.;Hyde M.K. | Institution: | (Chambers, Hyde, Laurie, Legg, Lowe, Dunn) Menzies Health Institute Queensland, Griffith University, Brisbane, QLD, Australia (Chambers, Hyde, Laurie, Legg, Dunn) Cancer Research Centre, Cancer Council Queensland, Brisbane, QLD, Australia (Chambers, Frydenberg, Davis, Lowe, Dunn) Australian and New Zealand Urogenital and Prostate (ANZUP) Cancer Trials Group, Sydney, NSW, Australia (Chambers, Lowe) Prostate Cancer Foundation of Australia, Sydney, NSW, Australia (Chambers, Dunn) Institute for Resilient Regions, University of Southern Queensland, Toowoomba, QLD, Australia (Chambers) Health and Wellness Institute, Edith Cowan University, Perth, WA, Australia (Frydenberg) Department of Urology, Monash Health, Melbourne, VIC, Australia (Frydenberg) Department of Surgery, Faculty of Medicine, Monash University, Melbourne, VIC, Australia (Davis) Eastern Health Clinical School, Monash University, Melbourne, VIC, Australia | Issue Date: | 19-Sep-2018 | Copyright year: | 2018 | Publisher: | BMJ Publishing Group (E-mail: subscriptions@bmjgroup.com) | Place of publication: | United Kingdom | Publication information: | BMJ Open. 8 (2) (no pagination), 2018. Article Number: e019917. Date of Publication: 01 Apr 2018. | Journal: | BMJ Open | Abstract: | Objective To explore men's lived experience of advanced prostate cancer (PCa) and preferences for support. Design Cross-sectional qualitative study applying open-ended surveys and interviews conducted between June and November 2016. Interviews audio-recorded and transcribed verbatim and analysed from an interpretive phenomenological perspective. Setting Australia, nation-wide. Participants 39 men diagnosed with advanced PCa (metastatic or castration-resistant biochemical progression) were surveyed with 28 men subsequently completing a semistructured in depth telephone interview. Results Thematic analysis of interviews identified two organising themes: lived experience and supportive care. Lived experience included six superordinate themes: regret about late diagnosis and treatment decisions, being discounted in the health system, fear/uncertainty about the future, acceptance of their situation, masculinity and treatment effects. Supportive care included five superordinate themes: communication, care coordination, accessible care, shared experience/peer support and involvement of their partner/family. Conclusions Life course and the health and social context of PCa influence men's experiences of advanced disease. Multimodal interventions integrating peer support and specialist nurses are needed that more closely articulate with men's expressed needs.Copyright © Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2018. All rights reserved. No commercial use is permitted unless otherwise expressly granted. | DOI: | http://monash.idm.oclc.org/login?url=http://dx.doi.org/10.1136/bmjopen-2017-019917 | Link to associated publication: | Click here for full text options | PubMed URL: | 29455168 [http://www.ncbi.nlm.nih.gov/pubmed/?term=29455168] | ISSN: | 2044-6055 (electronic) | URI: | https://repository.monashhealth.org/monashhealthjspui/handle/1/37583 | Type: | Article | Subjects: | health care health care access human interpersonal communication intimacy *life event male masculinity *metastasis/di [Diagnosis] *metastasis/dm [Disease Management] *metastasis/dt [Drug Therapy] middle aged open ended questionnaire patient attitude peer group *personal experience physical capacity *prostate cancer/di [Diagnosis] *prostate cancer/dm [Disease Management] *prostate cancer/dt [Drug Therapy] qualitative research quality of life sexuality support group telephone interview very elderly antineoplastic hormone agonists and antagonists/dt [Drug Therapy] prostate specific antigen/ec [Endogenous Compound] *castration resistant prostate cancer/dt [Drug Therapy] adult *advanced cancer/di [Diagnosis] *advanced cancer/dm [Disease Management] *advanced cancer/dt [Drug Therapy] aged article Australian *cancer diagnosis cancer hormone therapy cancer palliative therapy cancer patient *castration resistant prostate cancer/di [Diagnosis] *castration resistant prostate cancer/dm [Disease Management] clinical article cooperation cross-sectional study digital rectal examination domestic partner family fear digital rectal examination domestic partner family fear health care health care access human interpersonal communication intimacy *life event male masculinity *metastasis / *diagnosis / *disease management / *drug therapy middle aged open ended questionnaire patient attitude peer group *personal experience physical capacity *prostate cancer / *diagnosis / *disease management / *drug therapy qualitative research quality of life sexuality support group telephone interview very elderly Article aged *advanced cancer / *diagnosis / *disease management / *drug therapy Australian adult *cancer diagnosis cancer hormone therapy cancer palliative therapy cancer patient *castration resistant prostate cancer / *diagnosis / *disease management / *drug therapy clinical article cooperation cross-sectional study |
Type of Clinical Study or Trial: | Qualitative study |
Appears in Collections: | Articles |
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