Please use this identifier to cite or link to this item: https://repository.monashhealth.org/monashhealthjspui/handle/1/43043
Title: Perspectives on rehabilitation for Aboriginal people with stroke: a qualitative study.
Authors: Kelly J.;Dowling A.;Hillier S.;Brown A. ;Kleinig T.;Goldsmith K.;McBride K.;Pandian J.;Castle S.;Thrift A.G. 
Institution: (Kelly, Dowling, Brown, McBride) Wardliparingga Aboriginal Research Unit, South Australian Health and Medical Research Institute, Adelaide, Australia
(Kelly) Adelaide Nursing School, The University of Adelaide, Adelaide, Australia
(Dowling) College of Nursing and Health Sciences, Flinders University, Australia
(Hillier, McBride) Allied Health Human Performance, University of South Australia, Adelaide, Australia
(Brown) Aboriginal Health, Sansom Institute for Health Research, University of South Australia, Adelaide, Australia
(Kleinig, Goldsmith, Castle) Department of Neurology, SA Health, Adelaide, Australia
(Kleinig) Adelaide Medical School, The University of Adelaide, Adelaide, Australia
(Pandian) Department of Neurology, Christian Medical College, Ludhiana, India
(Thrift) Stroke and Ageing Research Group, School of Clinical Sciences at Monash Health, Monash University, Melbourne, Australia
Issue Date: 6-Jul-2021
Copyright year: 2021
Publisher: Taylor and Francis Ltd.
Place of publication: United States
Publication information: Topics in Stroke Rehabilitation. (no pagination), 2021. Date of Publication: 2021.
Journal: Topics in Stroke Rehabilitation
Abstract: Background. Aboriginal and Torres Strait Islander (hereinafter respectfully termed Aboriginal) people have a greater incidence of stroke at a younger age than non-Indigenous people in Australia. The needs and preferences of Aboriginal people for rehabilitation and longer-term support remain largely unknown. Objective(s): To identify the long-term rehabilitation needs of Aboriginal people who have a stroke, from the perspectives of Aboriginal persons with stroke and health care providers. Methods. Aboriginal people who had experienced stroke in the previous three years were interviewed to obtain their experiences of rehabilitation care. Health professionals who provided care in each of six designated hospitals and nearby community health sites were involved in focus groups and individual interviews. Information obtained was thematically analyzed separately for Aboriginal people with stroke and health professionals, and compared using Nvivo. Results. Among six Aboriginal people with stroke and 78 healthcare providers, four main themes emerged: the importance of family; variable access to services; the impact of stroke on Aboriginal peoples' lives; and making positive choices. Communication and involvement of family was highlighted as essential for a shared understanding, particularly when making decisions about participating in short and long-term rehabilitation. Co-morbidities, conflicting priorities, and inadequate or inflexible services and transport compounded issues with changing life roles. Stories of resilience were also shared. Conclusions. Aboriginal people report making positive lifestyle changes, but experience significant unmet rehabilitation needs. Addressing issues of communication, advocacy and flexible delivery should improve some of the shortfalls in service provision, particularly in regional and remote areas.Copyright © 2021 Taylor & Francis Group, LLC.
DOI: http://monash.idm.oclc.org/login?url=http://dx.doi.org/10.1080/10749357.2021.1911771
PubMed URL: 34180366 [http://www.ncbi.nlm.nih.gov/pubmed/?term=34180366]
URI: https://repository.monashhealth.org/monashhealthjspui/handle/1/43043
Type: Article
Subjects: *cerebrovascular accident
comorbidity
*First Nation
health care personnel
interview
lifestyle modification
*qualitative research
rehabilitation
rehabilitation care
*Torres Strait Islander
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